ABOUT US
When you think about Alzheimer’s Disease, whose face comes to mind?
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Chances are it’s a grandparent, or possibly a famous person who disclosed their struggle: President Reagan. Glen Campbell. Pat Summitt.
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But while Alzheimer’s is most often associated with aging, there is a small and unique group of individuals who face a different reality. These people carry a rare genetic mutation that causes Early Onset Familial Alzheimer’s Disease (EOFAD), and unlike the general population, they have inherited a certainty of developing this devastating disease as early as their 30s, 40s, or 50s. Many have watched their parents or siblings succumb to Alzheimer’s, knowing they will likely face the same fate.
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However, this heartbreaking certainty has driven these individuals to take extraordinary action. They have been given the opportunity to participate in groundbreaking research that could change the course of Alzheimer’s for future generations. Despite knowing what lies ahead, their commitment to finding a cure is unwavering. They are determined to change the trajectory of Alzheimer’s Disease, not just for themselves, but for all families impacted by this devastating disease.
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The White Flower Foundation is a nonprofit organization dedicated to supporting these courageous individuals: the unsung heroes who have dedicated their brains, bodies and time to research that has advanced the treatment of Alzheimer’s to levels that leave researchers and families hopeful that science is on the brink of breakthroughs we previously could only dream about.
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White Flower Foundation chose to support this small group of people to honor their selflessness and commitment in pioneering the way Alzheimer’s Disease research is conducted. They are participants in the longest running study in the history of the disease.
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Please consider a generous donation to support these individuals who are dedicated to finding a cure regardless of what they must personally endure. As many of you know, this cause is deeply personal to me: I am one of those individuals diagnosed with EOFAD. Recently, I enrolled in my third clinical drug trial to give researchers a firsthand look at long term effects of a drug designed to change the pathology of the disease in the brain, helping to determine whether we can ultimately prevent the disease and its symptoms.
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Below please find a heartfelt request for donors that outlines the vital role participants play in finding a cure for Alzheimer's Disease and emphasizes the need for financial support through endowments and counseling: